Return of Amyloid Imaging Research Results in MCI
|Project Period: 06/01/2014 - 05/31/2019||PI: Jennifer Lingler, PhD, MA, CRNP|
|Funding Source: NIA, R01|
|Researchers: Rich Schulz, PhD, Lisa Tamres, Melissa Knox|
|Preliminary work suggested that research participants with mild cognitive impairment (MCI) and their families were receptive to receiving amyloid imaging results and capable of understanding the purpose, results and implications of these results when presented using a stanardized approach. This study built on this work with the overall goals to 1) establish a data-driven understanding of the benefits and burdens of returning amyloid imaging results to participants with MCI and their family members and 2) to identify the information and support needs of patients and families who are offered amyloid imaging research results.|
- Grill JD, Apostolova LG, Bullain S, Burns JM, Cox CG, Dick M, Hartley D, Kawas C, Kremen S, Lingler J, Lopez OL, Mapstone M, Pierce A, Rabinovici G, Roberts JS, Sajjadi SA, Teng E, Karlawish J. Communicating mild cognitive impairment diagnoses with and without amyloid imaging. Alzheimers Res Ther. 2017;9(1):35 PMID 28472970.
- Lingler JH, Butlers MA, Gentry AL, Hu L, Hunsaker AE, Klunk WE, Mattos MK, Parker LA, Roberts JS, Schulz R. Development of a Standardized Approach to Disclosing Amyloid Imaging Research Results in Mild Cognitive Impairment. J Alzheimers Dis. 2016; 52(1):17-24. PMID: 27060950.
- Lingler JH, Roberts JS, Kim H, Morris JL, Hu L, Mattos M, McDade E, Lopez OL. Amyloid positron emission tomography candidates may focus more on benefits than risks of results disclosure. Alzheimers Dement (Amst). 2018;10:413-420.